The Raftery Quad

Let it snow!!!

2012-01-12T13:06:00.002-05:00

Momma's in Chicago for the weekend...daddy-o is on a business trip in sunny San Diego! Kiddos are safe and sound with Granny Smith. The snow is making a grand appearance and I'm loving the blogger app I just discovered (I was a bit behind on the times)!

It's a Wrap!

2012-01-08T22:09:00.000-05:00

The Christmas season is behind us which has left me behind on blogging! This year we decided to stay home and be in the moment of Christmas. While I love the anticipation of traveling, there is something to be said for being home. It allowed us to create our own traditions which in turn created an atmosphere of wonder, excitement, and peace. We were lucky enough to have Papa Raftery, Auntie Evie, and Uncle Joe join us which truly put the icing on the cake!

Santa's cookies and Jesus's birthday cake were TOP priority!

and we managed to squeeze in some lovin' along the way!

We couldn't forget Rudolph so we whipped up a batch of "reindeer food".

Santa brought Nolan his OWN bike and helmet...what a hit!

The boys stayed busy with Subbuteo (a favorite past-time of the Raftery's)....

while momma was cookin' in the kitchen!

Miss K was oh so happy in her earmuffs

We made our way to Philly and the kids discovered one of the BEST children's museums. It's called the Please Touch Museum and our kiddos took the name to heart. They soaked up some daddy time and had some self discovery of their own...

Landon

and my munchkin!

This "time" together as a family flew by but it truly was a time we could connect. No appointments, no therapies, no schedules - just US.

I can't leave out our Murder Mystery party...good company, good wine, and great suspense!

A little sidenote is in order as well: Landon is STILL seizure free...4 months and counting! Our God is so faithful! Landon has mastered another milestone - he can now recite his ABC's!!! WOOO HOOO!

Advent

2011-12-11T21:56:00.000-05:00

ad.vent ~

a coming into place, view, or being; arrival

Christmas is here! My favorite season and time of year indeed! This year we've adopted a few new traditions and one that I'm completely smitten over is our Advent calender! Each day, the kids discover a new surprise centered around the true meaning of Christmas.

Last Sunday at church, we started a series called the Advent Conspiracy. The concept is simple: Worship Fully, Spend Less, Give More, and Love All. It is an awesome reminder of what this season is all about - stepping back and celebrating our Savior in a real authentic way.

This time last year, was filled with uncertainty. Truth be told, it was a dark time in our lives. We never doubted our Father; however, it was a true test of our faith. We remained optimistic about Landon and hopeful for his future but the sadness was overwhelming at times. This year, a new song has been created. A song of triumph, a song of praise, and a song of God's amazing love. Landon is celebrating 12 weeks of seizure freedom...12 weeks off medications!

JOY is Here!

Fall Goodness

2011-10-21T22:05:00.001-04:00

Last weekend we headed to one of our family favorites - Cox Farms! This larger than life farm, delivers fall goodness for all and leaves every child with a BIG smile!

These smiles never get old...

they remind me to step back and enjoy the moment

work = fun

Bernice was quite the beauty!

Farmer Jack handpicked our Landon to feed Ms. Bernice - a proud mommy moment indeed!

sUpEr slide...

no age limit required!

let the personalities shine

and shine some more!

We had a great weekend just being "us". The fall is one of my favorite times of year but this fall has a deeper meaning. We are celebrating four weeks of seizure freedom for our Mr. Landon! He is officially off ALL medications and I'm loving seeing his personality shine once again. We still have challenges that face us but we know our God is bigger than those challenges and we trust in Him!

"I can do all things through Christ who strengthens me" Philippines 4:13

above AND beyond

2011-10-08T20:51:00.000-04:00

A couple months ago, I received an email from my sister-in-law that brought me to tears. She was writing to let me know that her and Granny Smith were putting a team together in honor of Landon at the 2011 Walk for Children with Apraxia of Speech in Kansas City. They spent a month raising money and putting together an amazing event to honor our beautiful son along with the countless other children who have Apraxia of Speech. Granny Smith designed a Thomas the Train tent which had our pictures in the windows that allowed us to be there "in spirit". They also brought along a makeshift "Dixie" with wheels attached to symbolize Landon's horse back home. They went above and beyond anything I could have imagined and I'm SO very blessed to call them family! Thank you to all who have supported this cause that affects so many children worldwide and challenges our beautiful boy on a daily basis. We love you!

Team "Rif Raf Raftery"!!!

Landon's medal!

"In Your Silence"

~Sarah Grainer

In your silence I hear your fear,

Your need to have me always near,

The fear you won't be understood.

Speak my child - if only you could.

Some people don't know, they say "He'll be alright!"

They don't see the pain, the anguish and fright.

You understand all that they say and infer,

Yet you cannot respond - a pain you incur.

My love for you is simply not enough,

To get you through life, at times will be tough.

But I will help you grow with all in me,

You shall find your voice, this I guarantee.

Your voice will be strong, your words so proud.

You will one day stand tall and speak out loud.

You won't fear anymore, not being understood.

It is then that we'll know we did all that we could.

So for now in your silence I hear your fear,

Your need to have me always near.

The fear you won't be understood,

One day will be gone - it will be gone for good.

round two!

2011-09-14T20:54:00.001-04:00

Our house is feeling REALLY quiet these days!

Landon started preschool this week!

Old Bridge Preschool is a place who's motto says it all, "where EVERY child is exceptional". They integrate children from every walk of life and we have been beyond blessed to have found a place where explanations are not necessary and every child is excepted for who they are regardless of their needs, religion, or financial situation.

My BIG happy boy off for his first day of school!

Landon felt so PROUD wearing his patched up Thomas backpack!

He could hardly wait to get into his new room...

once there, he gave me a quick kiss, said bye, and ran into the classroom to meet his new friends and teacher! Oh how I love him so!

As I walked away, I reflected on Landon and where this past year has taken us. We've had our share of valleys but the mountains he has climbed overwhelm my heart. This "magic" diet that Landon has so graciously accepted in his life, is giving him the ability to experience life again. God continues to guide us and sustain us. He is showing us how all the trials are His mercies in disguise!

"Cause what if Your blessings come through raindrops

What if Your healing comes through tears

What if a thousand sleepless nights

are what it takes to know You’re near
What if trials of this life are Your mercies in disguise"

~Laura Story

Got Spaghetti?

2011-09-11T22:20:00.000-04:00

NOLAN does:)

fIrSt GrAdE!

2011-09-06T15:32:00.003-04:00

My bright eyed big ball of sunshine was ready for her next adventure today!

1st GRADE!!!

With her "revamped" backback in hand...

a spring and sparkle in her step...

and a BIG hug and kiss from her mama...

she was ready to set sail for another year!

Miss K - This summer took on a different meaning this year! I loved all of our Kennedy and mommy time we shared! Thank you for being my sidekick - I loved every minute of it! May your first grade year be filled with fun, adventure, and sweet memories!

Story

2011-08-29T14:02:00.001-04:00

This picture never gets old...
it tells of a story ~

A story filled with substance.

A story where every chapter has meaning, excitement, lessons, and memories.

This story gets deeper with each page...it continues to grow and gain more understanding.

This story is ours. It is one of my greatest gifts.

Happy 8th Anniversary!

Hangin with my Girl

2011-08-25T21:44:00.000-04:00

These times don't come a knockin to often so when K asked me to "chaperone" her summer camp field trip, I jumped all over it! Here are some pics of our GREAT adventure at the American History Museum (one of my favs in DC)!

Two of a Kind!

Discovering...

Reminiscing....

Laughing...

reConnecting!

Miss K - Thanks for the most AWESOME day! I love love loved it!

oNe!

2011-08-18T21:25:00.000-04:00

Nolan, Today you are oNe!

Twelve short months ago, you made our family complete!

Your smile, your laugh, your cry, and your joy have captured my heart!

I love how you welcome me each and every morning with your sparkle, how you rest your head on my shoulder, how you shower me with your "O" kisses, and how you've shown me how to love even deeper!

Good Morning Ma!

My very FIRST ice cream cone!

Need we say more?

Happy Birthday sweet boy!

How did you grow so big overnight

How did you get so smart and bright

Yesterday you were asleep in my arms

Today you’re growing off the charts

I’m so proud of you!

~ Frances England "you & me"

Midwest Swing

2011-08-11T21:36:00.001-04:00

This post is LONG overdue but I wanted to give those amazing grandparents something to smile about today!

Part One: St. Louis

We started our midwest swing this year in St. Louis! We went to Jared's cousins BEAUTIFUL wedding and managed to squeeze in precious moments with the family.

This one makes me grin from cheek to cheek!

and this one too!

The cousins had a blast together at the wedding - PJ parties were a huge hit!

Daddy Love:)

Granny and K found something special to always call their own - sewing. Granny has been teaching K her amazing trade and Kennedy truly loved every part of it!

Raftery smiles...

times two!

We loved our time in STL! As always, wonderful memories!

Part Two: Chicago

Laid Back!

My beautiful Sisters!

Great Grandma Lenke and Kennedy - what a blessing that we have these moments to share!

One of the biggest highlights of our trip was meeting my sweet niece Leila! She is SO Beautiful and oh SO sweet! Miss K was in "mommy" heaven!

My childhood bike revamped by my most talented padre!

Miss K and Grandma K tested it out - good as new!

Lemonade anyone?

K adored this time with Grandma K - so much that we've had two lemonade stands since!

Cheers!

A lover of fountains!

Paddleboat adventures with Auntie Meaghan!

A True Gentlemen...

walking in his daddy's footsteps.

ALL my sisters at ONE time - how awesome it was!

As we continue to experience life away from family, it draws me to a deeper place. A place where I appreciate the small things, a place where time slips away, a place where I treasure the here and now.

To our amazing family - thank you! Thank you for making our lives that much sweeter! Our cup runneth over!

First in Line

2011-07-20T15:41:00.001-04:00

One thing that is REALLY hard for me to do is to break from the stuff I love! One of those things happens to be this sweet blog. I'll never forget when my friend Beth introduced me to the world of blogging - I was a bit skeptical at first but now it truly is a love of mine. It has been an outlet, a diary, a poem, a story, a treasure...an opportunity to share a piece of our world with the ones we love. This season in our lives has dealt many challenges - challenges that have left me learning a lesson in priorities. A good lesson indeed! I haven't neglected our blog because I can't find the time. I've taken a break because my needs and the needs of my family have taken the "first in line" spot. With all that being said, I have lots to update!!!!

I'll start here:

Miss K is another year older! 6 years more smarter...6 years more wiser...6 years more sweeter! She is growing before our eyes! She reads to us, sings her sweet songs to us, and showers us with her love. I'm proud of her choices and her amazing drive, curiosity, and zest for life! I'm beginning to see how God designed her to be - what an amazing thing to watch! In less than 2 months, Miss K will start 1st grade...oh where is time going! Here's to an awesome year of being six my sweet K!

Landon is doing well...he's a month into the ketogenic diet a.k.a "the magic diet". During the first two weeks of initiating the diet, we saw our little miracle that we had desperately prayed for - two weeks seizure free! It was amazing to witness our son literally coming back to us...speech, motor skills, sensory issues, clarity, sleep were all improving and we were in awe of it all! I wanted to blog about his progress and the miracle that we were witnessing but I wanted to be careful and guard our hearts. I knew the thousands of stories before ours...stories of victory, stories of defeat, and stories of the in between. In the past two weeks Landon has had 4 seizures; however, we are not defeated. We are trusting that God has all of this in His hands - it's in Him that we find rest! I have to remind myself that it is not MY will but His will! While there is a small percentage that are seizure free from the beginning, it is more common to have some breakthrough seizures during the initial few weeks. We are now on day 8 without any recent seizures and I pray that our little guy continues to benefit from this amazing diet...I am so proud of his progress so far! He is so so strong!

Last but not least...Nolan! He is our resilient one! Always going with the flow of our busy life. He brings smiles to my day - his little dimples melt my heart:) He too is growing before our eyes! Nolan is our little chatter box - mama, dada, all done, and no are some of his favs. He has mastered cruising around furniture and everything in between...a man on a mission indeed! I love watching his little personality blossom - sweet, funny, and full of energy! Did I mention he's giving us sweet kisses now - oh how I loves those so!!!

Lots more to update...we just came back from an awesome vacation to St. Louis and Chicago and will post pics soon!!

Daddy-O is:

2011-06-19T08:34:00.002-04:00

Daddy-O is:

great because he loves me.

fun.

a great coach.

special.

nice.

great at playing with me.

great at eating burritos.

sweet and kind.

good at playing with trains.

terrific at giving hugs, kisses, AND the claw!

THE BEST DADDY-O EVER!

by Miss K, Landon, and Nolan

Sweetie you are all these words and more! I can't imagine a more perfect partner than you...a more gentle and loving father for our children. Happy Fathers Day!!

To My Father:

A special Happy Fathers Day to you dad! You have and always will hold a special place in my heart! Your love and guidance have carried me through some of the most difficult and triumphant times and I'm forever blessed to call you MY dad! I LOVE YOU!

Treasure Box

2011-06-07T22:58:00.000-04:00

This past memorial day, our party of five needed some much needed RELAXATION! There is no better place than the ocean. We headed to Rehoboth Beach and enjoyed a day of just US. A day without worries, a day without agendas, a day that lifted our spirits!

K and Landon spent their early years enjoying the sand, sun, and salt water...it was time for Nolan to meet one of our favorite spots - the ocean!

It was a beautiful day!

Kennedy and Landon got right to business - sandcastles, digging, and exploring

How I love him so!!

It didn't take long until these legs...

and toes hit the water!

SPLASH!!

This face says it all!

It's a place where kids can be kids...

a place where possibilities are endless...

a place where hearts connect...

a place where every carry in the world drifts away...

a place where new memories are created and treasured!!!

A place where this is the END RESULT:

Two wiped out kiddos and one ready for more adventure!

These are the moments I pack away in my treasure box...moments we can never get back but moments that we can never forget!

A New Beginning

2011-06-02T15:09:00.003-04:00

"All glory comes
from daring to begin"
~Eugene Ware

These past few weeks have been filled with doctors appointments, hospital stays, research, and most of all prayer. Landon has endured so much and he managed to keep his beautiful smile through it all.

Our neurologist has referred us to the Johns Hopkins Ketogenic Diet Program (the top Keto program in the nation!!!) The Ketogenic Diet dates back almost 80 years ago and shows promisingly results for children like Landon where medication is not effective in controlling seizures. The diet itself, consists of high fats, adequate proteins, and low carbohydrates - each meal prepared for him will be carefully measured, weighed, and planned. Typically,children are placed on this diet for two years in hopes of becoming completely seizure free. We are very optimistic and feel like God has put this in our path for a great purpose!

In two weeks, our journey begins. He will be admitted at Johns Hopkins for 4 days where Landon will be weaned off of his anti-seizure meds and placed on this new diet. During our stay, we will be educated and trained on how to implement this diet while Landon is carefully monitored during his transition. I'm overjoyed at the thought of Landon "off meds" and becoming seizure free! The story's I've found on other Keto kids have been awe inspiring and have given us hope - hope for Landon to enjoy this life to his FULL potential!

While these weeks have been challenging, we have been showered in endless love amongst all of our family and friends. We are BLESSED to have each one of you in our lives! Thank you for the meals, calls, encouragement, hospitality, and most of all prayers - they have been felt and God is listening...He has never left our side!

"He alone is my rock and my salvation;

he is my fortress, I will never be shaken."

~Psalm 62:2

Today you are...

2011-05-24T15:00:00.001-04:00

FOUR!

My sweet sweet Landon ~

You are four years old today! Where did time go? It seems like yesterday when my life was forever changed with the birth of beautiful you.

Today you are the same amazing boy that I fell in love with the moment I knew there was a you.

Today you are determined and brave.

Today you are moving mountains around you and redefining norms.

Today you are my son who I adore!

Today you are YOU and I couldn't be more proud to be your mama!

Happy Birthday BIG Boy!

In His hands

2011-05-16T16:01:00.000-04:00

This past weekend has brought Jared and I to our knees.

Our little Landon has had three grand mal seizures over the course of three days - they have all been in his sleep. His precious body has endured so much in such a short time. We are left with no answers; however, we are trusting that God will continue to lead us down the right path. We are going to the hospital tonight in hopes that an EEG can detect why this is happening and what we can do to treat his seizures effectively. Please pray for the doctors that surround us and for ultimate healing. Thank you to all of our friends and family for the support and love you have shown...we are blessed!

"You have allowed me to suffer much hardship,but you will restore me to life again and lift me up from the depths of the earth. You will restore me to even greater honor and comfort me once again."

Psalm 70:20-21

Hi and Bye

2011-05-10T09:51:00.000-04:00

He's growing before our eyes:)

A Mother Is...

2011-05-08T08:10:00.001-04:00

This day has taken on a different meaning through the years. I realize what a mother is...what a mother feels...what a mother fears...what a mother sacrifices. It's a day that I truly give thanks for my mother and the other women in my life that define the word and hold it close to their hearts.

She is Love

She is Compassionate

She is Faithful

Happy Mother's Day! We love you and thank you for everything you are in our lives!!

Walk On Dixie

2011-05-06T14:05:00.001-04:00

This past Thursday night we had our weekly therapeutic riding lesson at Simple Changes. Landon continues to amaze me with his determination and willingness to learn. Hippotherapy has proven to be a great match for him and Landon is building great confidence and strength through it!

Every Thursday night, we are greeted to this beautiful place!

Sitting tall and handsome on Dixie

Miss K has been such a great encourager for Landon...she gets just as excited when he says a new word or learns a new skill.

Into the woods he goes!

"Walk on Dixie" ~ Landon

Nolan discovered grass and dirt - he's hooked!

Loving those sweet freckles!

K and I spent the hour doing crafts and coloring - I adore this time with her!

Miss Sophia is amazing...her passion awe inspiring! She is such a blessing to us!

"The Lord takes care of his people like a shepherd. He gathers the people like lambs in his arms. He carries them close to him. He gently leads the mothers of the lambs"

Isaiah 40:11

Hop to It!

2011-05-03T21:25:00.002-04:00

Easter festivities this year were in FULL swing! After 5 weekend Easter egg hunts, a beautiful Easter service at church, and a delicious brunch with Papa Raftery, we headed over to the Anderson's for their Easter dinner - I lost count but I think we have spent 3 Easter's with them! The kiddos had a wonderful day and Mr. Nolan loved discovering all the goodies! With all the festivities aside, it was a day that reminded me of God's amazing goodness and favor in our lives - He is Alive!

Hoping along the bunny trail!

Mr. Landon hopped to it!

They were so proud of their finds...

and didn't miss a beat opening each and every one!

The Easter Bunny brought out all of their contagious sweetness!

At home, we hopped right to it and started decorating our eggs for the BIG EVENT the next day.

Nolan loved all the excitement as he bounced away

The kiddos were quite proud of the finished product!

Nolan was SUPER excited about his yogurt melts Easter day!

Nolan and Papa Raftery - so sweet!

I'm not sure which one is more kissable!

Happy belated Easter!

Anderson/Raftery Trip: Busch Gardens!

2011-04-18T19:17:00.003-04:00

We have known the Anderson family for 5 years now and it's been so awesome to have them in both JAX and now DC. Our families have grown together and have shared some amazing memories that I will truly cherish forever. We have gone on numerous trips/outings together and this past weekend we made our way down to Busch Gardens in Williamsburg. Our trip, as always, had some GPS malfunctions but we had a blast and laughed our way through some major detours!

I played around with an app that my friend Beth hearts and I LOVE it!

My Pilot

Our view driving in:)

The kids amused themselves as we waited for tickets...lines were a theme this trip!

Trying to capture all of the kids at once is quite challenging these days! I took what I could get!

The kids seemed to love the Wiggly Worm!

My not so little man!

Cutie Pies!!

Ben got the kudos award for taking on 4 kiddos on this ride...way to go Ben!

A splashing good time!

Love Birds!

Daddy-o has Landon in one of his famous headlocks!

Best buds!

We managed to sneak a pic in which we all know is hard to come by

We found these soccer jerseys on sale...we called them the jail birds!

Part tradition. Part friendly competition. Ben and Jared enjoyed some "manly" games!

Thanks Anderson fam for a fun filled weekend! We had a such an awesome and amusing time! It has been a blessing watching our kiddos grow together!

Granny & Granpy

2011-04-15T14:50:00.001-04:00

Granny and Granpy made another visit to DC a few weeks back and I'm FINALLY posting some pictures of our fun filled week. The kids as always had an amazing time with them!!

K and Granny during one of many craft projects!

Granny Smith has a Passion for sewing with a capitol P! She always seems to amaze me with her God given talents in this area. Her latest work of art was a weighted vest for Landon made out of Jared's old flight suit...patches in all! Granny did a lot of research on Apraxia and discovered the benefits of weighted vests for children like Landon. He uses it mainly at speech therapy due to its ability to give the sensory input that Landon craves. It is AWESOME!

Cheers to a wonderful visit!

We love you guys!

Let's Give 'Em Something to Talk About Baby!!

2011-03-31T10:01:00.000-04:00

I pulled out our camera for some candid Nolan time and this is what I got!

Love this little guy!

Meet Dixie

2011-03-09T14:33:00.003-05:00

She's tall yet poised

She's strong yet gentle

She's wise yet spirited

She's a perfect pony

Meet Dixie:

Dixie is Landon's newest friend. She is a therapeutic horse that will strengthen Landon's core as well as offering sensory input, confidence, and speech production. As Landon met his new companion last week, his smiled reminded me of that little boy deep within full of joy,happiness, and strength! He did an amazing job and managed to ride in front, sideways, and backwards positions on his first day. We have been blessed to find hippotherapy and I'm so excited to see the relationship between Dixie and Landon blossom!

(this was the only picture I snapped...it's the moment where Landon met Dixie:)more pics to come!

There is something about the outside of a horse that is good for the inside of a man. ~Winston Churchill

Profound

2011-02-24T15:33:00.001-05:00

This brought me to tears today...thinking of my sweet Landon. The entry comes from a fellow blogging mom who is fighting similar challenges with her daughter.

"Watching that miracle from behind the glass mirror, I realized my truth: Rylie is NOT broken. She is the very image of God. God, who knows what it is to hurt. What it is to be misunderstood. What it is to have people define you by their fears. What it is to love unconditionally. Rylie is a lot of things, but she is NOT broken.

Her story does not stop at her diagnosis, and, therefore, neither does mine.

What is Rylie for? She is for redefining norms. She is for healing old hurts. She is for second-chances. She is for seeing God in a tiny little body, fighting to be heard. She is a messenger. She’s a game-changer.

I had it all wrong. And, I’m sure I will again. But I am certain that I would not have learned this lesson without my child. Not so effectively. That’s what she is for.

And I am not afraid anymore.

I am a lot of things, but I am not afraid."

http://texasnorth.wordpress.com

A New Do

2011-02-22T15:33:00.000-05:00

BEFORE:

AFTER:

SO HAPPY:

Miss K has an oh so cool new do these days! She decided last week that she wanted to go short and that she did! I love it, she loves it! It fits her spirited personality so well! Lovin' that confidence and adventure!

6 months of LOVE

2011-02-15T13:42:00.000-05:00

My little guy is about to be 6 months! He has captured my heart yet again and I'm blown away at how his life has transformed me. As our third child he has given me the gift of being in the moment and treasuring each and every day!

Your EYES

Your SMILE

Your SPUNK

Your PEACE

I love you Nolan! You are a special special gift! These past 6 months have filled my heart in so many ways!

Pray!

2011-02-10T14:49:00.001-05:00

Five years ago, Miss K met a very special boy named Luke. Five years ago, I met a woman who embodied the word "mom"! Our families crossed paths not by chance nor by accident. Kennedy and Luke started preschool together at the tender age of 15 months where a beautiful friendship was started! He is a boy full of life, full of spirit, and full of joy!

Luke was in a life altering event that started one month ago. The diagnosis of Spinal Meningitis has proved to be a road filled with questions and uncertainty. He is battling to regain his speech along with the use of his left side which has left him in a wheelchair. This past month has been filled with many GIANTS for them but their faith and trust in God has given them peace in a very uncertain time! I am in pure awe as I read their daily blog. They are amazing parents fighting for their precious son! Please pray for Luke and their family...pray for healing, guidance, and trust!

Jesus replied "The things which are impossible

with men are possible with God"

Luke 18:27

Purpose

2011-01-29T23:23:00.001-05:00

I debated whether it was time to write a blog on this topic, but tonight I feel led. I was unsure if I wanted to share specific details because I didn't want it to become a controversial topic or an issue that we where "held" too. Sounds strange I know!

Ok...here it goes!

We all have a purpose in life...some of us may know what it is and some of us may not. I've prayed for quite some time that God would show me my purpose...my "calling" in life.

Over the past few years, I have been challenged in many ways. At times it has felt as if I couldn't handle the challenge in front of me. I've hit bottom only to find myself lifted back up by encounters, friendships, and words of affirmation. One day in particular stands out for me. While this may sound small to some, it was HUGE for me. It happened after Landon's speech therapy session a few months ago; the session wasn't great. Landon was tired, frustrated, and wanted no part of "using his words". I felt defeated in that moment. As we were walking out, a lady walked in who I only had seen once before. She smiled at me and said, "You are an awesome mom!" It was as if God saw my heart in that very moment and He was saying, "Everything is ok...hang in there...I'm right beside you." That mom made a day of despair beautiful and bright!

My journey into the world of Apraixa started when Landon was two and I found an amazing book called "The Late Talker". It was a book that gave me answers into Landon's difficulties even though his doctors seemed to brush off his delays. A mother's intuition is never wrong...it's an amazing God given gift! I've learned to trust it and use it. I knew from that moment that I had to be my son's best advocate; no one else could fight for him like I could. So that's what I did. I found every book, blog, and website I could on Apraixa. I was obsessed. I wanted answers, explanations, but most of all hope.

After we moved to DC, six months went by where Landon didn't receive any therapy or services. Insurance issues mixed with relocating made for a messy situation. The sad part was that Landon was just a number, his case was among thousands and a 2 1/2 year old boy was not priority in their eyes.
Enter titan mom!

I have found that there is no place for laziness in this business. If you don't stay on top of your needs, and I mean the tippity TOP you won't succeed. This mentality has led us to some of the BEST therapists and doctors DC has to offer. They are ALL amazing and gifted! Through networking and God's amazing plan, Landon has been blessed with Karolynn (speech therapist), Myrna (occupational therapist), Dr. Civetello (neurologist), and last but not least Dr. Mary Megson (developmental pediatrician).

Dr. Megson's philosophy, which may sound foreign to some, is based on healing the body from within. Our journey with her began last Wednesday with a trip to Richmond, VA. Through countless hours of research, I continued to come across her name as someone who was willing to look deeper into the challenges children like Landon face. I didn't want someone who brushed us off like the doctors before her. It wasn't uncommon to hear, "keep doing what your doing", "he's a boy...things come later". I wanted someone to say, "yes, here are the issues and here's how we can help fix it." Sounds simple but this path has opened my eyes to a lot, including the medical community.

For so long, we were told to use a laxative called Miralax to remedy his GI issues, but that just didn't seem right to me. I wanted to know WHY he was having these issues! I wanted to stop seeing him on all fours in pain from constipation. His daily life is challenged with the inability to communicate along side many other subconditions such as seizures, irritability, sleepless nights, and motor planning difficulties.

The seizures which started 6 months ago, have been controlled by a medication called Keppra. Keppra has a street name of "rage-eppra". The name speaks volumes. It causes mood swings, constipation, and among other things fatigue. Recently, we have noticed some questionable incidents where Landon will abruptly drop his head. We have an upcoming 36 hour video EEG which will give us more answers but as of now they look like head drop seizures. I can't put it into words what it is like to see my son go through this insanity...I feel absolutely helpless!

Dr. Megson gave us insight like no other. She explained the science behind Apraxia and how so many things from our environment (pollutants, vaccination overload, etc) have given us the epidemic that is plaguing our kiddos. The rate of ADHD, autism, and communication disorders is rising more rapidly then ever before. After she spent 2 hours with us, we walked away with hope. Landon is on a special diet that eliminates wheat and dairy along with countless supplements to help with digestive issues, regulation, and overall health. As we made a 2 hour trip home to DC, Jared and I took on this new challenge with excitement and optimism. Yes, the diet and supplements will be a pain at times but so worth the opportunity to have my son back to where he needs to be.

Fast forward to purpose...

I have been given an opportunity to mother a child with special needs...it is a continuous journey that has taught me more than I could ever imagine. How to love deeper...how to have faith no matter what the circumstance...how to be still regardless of the storm that faces me. My love for him has brought me to a place that I am grateful for...he has changed my life and I know he has and will impact so many others. I have prayed that God would show me what I can do...how I can use this gift for others. I truly feel that I need to be helping others in similar challenges and give them that shoulder and hope that I longed for in the beginning of our journey. At church last Sunday, I met an amazing mother of four who has a little precious boy with special needs. He is beautiful! I felt that "push" to introduce myself and I can't explain how exciting it is to be able to befriend her and share everything I can with her as she enters into her own journey.

I'm not sure where and what the road ahead looks like but what I do know is that God has me in this place for a great purpose. He has plans for Landon and His plans are always perfect!

This is not where we planned to be
When we started this journey
But this is where we are
And our God is in control

Though this first taste is bitter
There will be sweetness forever
When we finally taste and see
That our God is in control

~ Steven Curtis Chapman

and it happened!

2011-01-16T21:26:00.000-05:00

With a smile...

a little wiggle...

it happened!!!

She did it...she pulled that tooth out and was so PROUD of her accomplishment!

Miss K ran into the bathroom to catch a glimpse of her new beautiful smile!

Tooth Fairy, here we come!!!!

Attention!! Attention!! Read All About It!

2011-01-11T13:16:00.003-05:00

Guess who is coming to the Raftery house soon!

The Tooth Fairy!!!!

Do you see it? It's that cute little tooth wiggling away!

My sweet little K! How I just love you so! It seems like yesterday that we welcomed your first tooth! I captured your most precious grin full of those pearly whites that I'll soon be missing so! Daddy-o and I are having a hard time processing all of this but your excitement is amazingly contagious!

Other than a dimple in a cute little chin,

What's more adorable than a toothless grin?

~Azu "Betty" Espezia

Rewind

2010-12-12T12:40:00.001-05:00

Anyone that checks our blog knows that I go through periods of posting a lot and periods where I just cannot find the time! Life is busy in the Raftery house. What I've come to realize is that no matter how much time you have, you fill it up. I go through times where I throw myself a pity party with all of our weekly to do's. Guilt seeps in and I wonder if my friends understand my season of absence. I'm not the Sam I was 2 years ago....back then I had time to have play dates, mommy time, and go to the gym. Last night as I read my devotional (Out of the Spin Cycle) I reflected on the fact that God has me in a special place regardless of my fears, struggles, and failures. He knows what I need and He understands the desires of my heart. I know there will be a season again that my "mother load" is lighter but I also feel blessed that God gave ME the opportunity to mother three beautiful children...He gave ME the opportunity to take Landon to therapy...He gave ME the chance to help others through our challenges. While playdates seem to be a thing of the past lately, I've had the opportunity to meet incredible courageous families who inspire and encourage me. There are also moments where you see the fruits of your mothering blossom. Just the other day at the dinner table, Kennedy paused and said "Christmas is a special time..presents are great but the real special part is that Jesus was born". The Fruits! Landon is moving right along too. I just love that little guy! He is now able to say his ABC's, count to 10, play memory card games, and the language is coming. Last year I never could imagine him putting two words together but God is faithful and he is now stringing two words together and is able to read sight words. Yes I'm bragging...but I'm so proud! I cannot forget about our Nolan too! He is so sweet and patient and loves his new freedoms of grasping toys, rolling over, and babbling. Oh and I can't forget those sweet dimples of his!

Moving on and rewinding a bit....

This past Thanksgiving was spent in St. Louis with a pit stop at my moms B&B. Although the drive was a bit long (especially with a three month old) our Thanksgiving was truly relaxing and beautiful!

The mill looks so beautiful in November!

Before we headed into St. Louis, Miss K and Nana went hunting for osage-orange fruit that falls during this time of year. K loved it and managed to stash 5 of them in our car!

This was right up K's alley...she adores exploring and finding "treasures"!

Nana and K before we headed out. Thanks for always welcoming us Mom...we love you!

As we gave thanks this Thanksgiving, we also said goodbye to Jared's Aunt Catherine. Her memorial service was beautiful and it reflected the long compassionate life she lived. She was a woman of strength, faith, and love.

Nolan meeting Auntie Evi and Auntie Zoom

Cookie time with Granny Smith

See those dimples...love 'em!

I'm not sure where Granny gets this energy but I hope that I can do airplanes and headstands when I'm that age! The kids soak it up!

Miss K loves her Auntie Zoom! We had some girl time and went shopping at Michaels Arts and Crafts (K LOVES this place) where Auntie Zoom got her a new paint set and Granny found a her a beginners sewing machine....Miss K was quite excited!

Traveling can be exhausting at times but so worth each and every moment!!!

T is for THOMAS!!!

2010-11-25T11:50:00.002-05:00

This past weekend, Jared and I surprised the kiddos with a trip to PA to see none other than THOMAS the TANK ENGINE!

The anticipation of seeing their faces was exciting in itself! Miss K thinks Thomas is pretty cool but Landon ADORES Thomas and I was dancing in my pants thinking of my little guy in awe! As always, our trip was filled with some interesting events including a flat tire that caused an hour detour to Firestone but beyond all of that we had an amazing time that left me more thankful for the smiles that fill my life!

The Strasburg Railroad is a sight to see...the trains are original coal burning steam trains packed with velvet seats and cast iron detailing.

"Mama...Dada...omas...omas(thomas)!!"

"Thomas is real!!"

Landon's eyes say it all...they tell the story of a little boy who loves his trains.

Getting ready for Thomas to start his engine!

All Aboard!!!

Round and round we go!

As we waited to meet Sir Topham Hatt...Landon was dancing in excitment!

Now arriving...Thomas the Tank Engine

There is something about Landon's eyes that continue to remind me of his passion, innocence, and sweetness. I love this guy!

On our way back to DC we took the back roads and found a great Amish village that showcased local crafts and food. They had a great petting zoo for the kids where they had a chance to feed llamas, sheep, and goats.

Yeah for play!

Miss K has such passion and zest for life. She finds the greatness in the small things...these pics fill my heart when I see her beautiful personality sine through!

Miss K (aka conductor) assigned us seats where we went for the best train ride in town!

Our little guy was content as always in his peanut shell...I often wonder what life was like without him just three short months ago. He is so sweet and peaceful!

The best passenger on the train was none other than Daddy-O himself! These trips remind me of the blessing he is in our lives! The best road trip in my life is spending it with my main man...love you babe!

The Big 30 and the Big Apple

2010-11-09T14:41:00.000-05:00

This past weekend I celebrated my 30th birthday with a surprise getaway to NYC!! Jared has always done a super job of making me feel special on my birthday but this birthday was extra special with a cherry on top!!

After checking into our hotel, we headed to Times Square. Pictures don't do it justice but it was an amazing sight to say the least!

This pic was all for my Landon!

After an amazing dinner at Sushi Samba, we headed to an off-broadway production called "Miss Abigail's Guide to Dating, Mating, and Marriage". It was a great topper to a evening I will never forget!

Kennedy and Landon stayed back with Papa Raftery for the weekend while Nolan enjoyed some alone time with mommy and daddy. He was quite the trooper through all of our sight seeing and fun!

When we got home, I was welcomed to a beautiful surprise of balloons, banners, and flowers. It was weekend I will always treasure! Thanks babe for making me feel so incredibly special and loved!

Thank you Papa Raftery for taking on two kiddos who truly adore you!

(yes there are no pics of Jared and I! Sounds pretty crazy but we were all wrapped up in the moment just enjoying us!)

Toto, we're not in Kansas anymore!

2010-11-01T08:32:00.000-04:00

Pumpkin Party!

hosted by: Daddy-O

Any activity with him involved is sure to be a major hit and this was no exception!

Costume Party!

hosted by: the Wicked Witch of the East & the Scarecrow

Dorothy was beyond excited to explore Emerald City!

With three taps of her ruby red shoes...

We were off!

We found the tin man on the way...he was quite the looker!

and then that adorable lion and scarecrow joined us!

We walked and walked down that yellow brick road

and managed to get some squeezes in too!

It was a magical evening filled with smiles and of course lots of TREATS!

My DOROTHY!

My LION!

My TIN MAN!

and last but not least, My SCARECROW!

Our Halloween was filled with excitement, wonder, and pure fun! It left me saying, "There's no place like home!"

Ode to Granny and Grampy

2010-10-27T20:55:00.004-04:00

Granny and Grampy are quite a pair...

they came to our house and it was a beautiful visit!

Filled with laughter and cheer, we wish they lived near...

but without a doubt, we were sure glad they were here!

Hi Granny! My name is Nolan!

Chesse!

Hi Grampy! I'm so glad to meet you!

"I think I'm going to like these two!!!"

Miss K had a nice surprise when she got off her bus. She had a HUGE smile when she spied her Granny (I think Granny was a bit excited too! :)

Strike a pose...there's nothing to it! VOGUE!

How cute are they???

Can't forget about these two! While this is the only pic I have of Landon and Granny, they had a GREAT time together...he completely adores her!

Thank you for a wonderful visit! You guys have such a beautiful spirit and your love pours out into our kiddos! We love you!!

ReVaMp

2010-10-12T20:57:00.000-04:00

The Raftery Quad is now officially "Raftery Party of Five"! Our most amazing and talented friend Beth has done an a beautiful job making it all come together with her blog design and creativity.

Thanks Beth for making our blog so darn cute!!!

Nolan Ryan???

2010-09-29T14:27:00.000-04:00

On Monday night, Nolan attended his very first baseball game! We joined Jared's office at the Washington Nationals vs. Phillies game and it proved to be a very memorable night!

After a series of "events", we ended up in front left field with pretty awesome seats. During the bottom of the second inning, a home run came bolting our way! With a leap, a jump, and a spilled beer, Jared CAUGHT THE BALL!!

We have ourselves asking if our little Nolan is a baseball hall of famer in the making!

WAY TO GO DADDY-O!

DIY

2010-09-24T14:28:00.000-04:00

I can't say I'm the craftiest gal around but lately I have had some ideas working up in this mind of mine!

First, I've been wanting to create my own wreath for some time. When I came across artificial oranges that were on clearance for 50 cents (yes 50 cents!!) my wreath came to life! Lets just say the hot glue gun and I had a killer time! It was fun to create something of my own and it's a great fall addition to our door. Here is a pic of the final product:

Secondly, since we've moved in to our new home, I've been trying to come up with inexpensive ways to add some pizzaz to our white walls. This is the project I will be taking under next week:

I LOVE IT! Our dining room will soon be adorned with this DIY chevron paintings.

Wish me luck :)